RE:Connect

A blog written by oncology nurses for oncology nurses

RE:Connect

Survivorship in 20-​​Somethings

[By Alene Nitzky, PhD, RN]

When a large pro­por­tion of our patients are older, we get to know the needs of their age group.

This past week, it seemed like I saw a pre­pon­der­ance of young peo­ple in our clinic, although maybe it was a ran­dom event that their appoint­ments hap­pened to fall on the days I worked.

Peo­ple in their 20s are try­ing to be inde­pen­dent and are still fig­ur­ing out who they are. They want to be with their friends, break­ing away from their par­ents, and mak­ing their own decisions.

When they get sick, all of that comes to a halt, espe­cially with a pro­longed course of treat­ment. They need their par­ents again and might need to move back home. They can’t be as phys­i­cally and socially active as their friends, and they’re hav­ing to deal with a whole new world of infor­ma­tion and con­cerns peo­ple their age rarely think about. They might, or might not, have the matu­rity to han­dle the impli­ca­tions of their dis­ease. Some of them may already be over­whelmed with respon­si­bil­i­ties that they are not fully able to han­dle, like par­ent­ing. Some are recently mar­ried and adjust­ing to life as a cou­ple when the diag­no­sis comes.

Depend­ing on how healthy their rela­tion­ship with their fam­i­lies of ori­gin, many other stres­sors come into the pic­ture. Some­times patients cope bet­ter than their par­ents do. Often their par­ents are young too, not even old enough to be think­ing about health con­cerns related to aging for themselves.

Young peo­ple still need guid­ance, even though they can be in var­i­ous stages of matu­rity. Some don’t have a strong parental pres­ence in their lives, or they haven’t been around peo­ple who are mature adults who pro­vide the sup­port they need. When diag­nosed with can­cer, they can expe­ri­ence a col­li­sion of two worlds: their illu­sion of immor­tal­ity crashes head-​​on with mor­tal­ity. They need extra coach­ing and teach­ing to adjust their way of thinking.

The con­cerns I hear include how to deal with child care dur­ing treat­ment or hos­pi­tal­iza­tion, and they need guid­ance on pre­vent­ing expo­sure to sick chil­dren when the kids bring colds home from day care. Or they don’t fully under­stand what low platelet counts have to do with the fact that they can’t go hik­ing or ice skat­ing with their friends this week­end. “I’ll be okay, nothing’s going to hap­pen to me out there.” When a young cou­ple asks about pre­cau­tions dur­ing chemo for sex­ual activ­ity, I com­mend them for ask­ing the ques­tions. I was pleased to hear that the physi­cian talked to them about sex, too.

In a small com­mu­nity, sup­port net­works might not be avail­able specif­i­cally for peo­ple in their 20s fac­ing can­cer. The con­cerns of older adults are very dif­fer­ent, and young peo­ple can feel awk­ward among peo­ple the same age as their par­ents or grand­par­ents in a sup­port group.

Being young and basi­cally healthy can be an asset, but the bur­den of stress is no less for 20-​​somethings. We need to make sure we are pro­vid­ing infor­ma­tion to help them, that is age-​​group appropriate.

Alene Nitzky Alene Nitzky, PhD, RN, works in an outpatient oncology clinic. She has an interest in survivorship and wellness. An ultramarathon runner, writer, and pastel artist, she enjoys spending time with her husband and their two Australian Shepherds and sees every day as an adventure. Her blog, Journey to Badwater, is about running and life. She lives in Fort Collins, Colorado. Read more articles by Alene Nitzky --

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