It is unusual for an insurance not to cover the cost of testing as long as there are appropriate indications. Even if a patient has a deductible or copay, most labs offer generous payment plans. Often, a more appropriate family member should be tested first. If that person tests positive, testing for other family members is considerably less expensive because the tests are just for the identified mutation.
For those who do not have insurance, most of the testing labs have patient assistance programs for appropriate candidates. Our institution also has grant funds to help with cases that may fall between the cracks.
I think one of the key issues is to make sure we are testing appropriately, and that means making sure the patient has met with a genetic counselor to help address all the financial, psychosocial, discrimination, and other issues associated with testing.
Pam Winter, RN, OCN®, CBEC
Breast Health Specialist
Baptist Breast Risk Management Center
Memphis, TN